Hi Admin,
I am not sure if it is wise to delete all inactive members, because through that we will not be able to "keep the flow".
In addition we all are ill and are struggling. Therefore taking part in a regular way may not be possible. I always have many plans, but this year I am often struggling and during the last weeks I spent most time in bed not able to do anything.
I still stand behind this forum, because it provides many good and useful informations to many different topics. I think we need to keep going independed how many take part.Namid
Hi Namid:
Fair point. When I was at my worse, unable to use a PC, phone, watch TV, read, too weak to talk etc. I was not a member of forums during those critical times.
OTOH, there are other members who are more able than others...
It’s only a minority who suffer disabling symptoms to the extent of not
being able to post.
There is no flow, no interaction, no dynamics established since HQ was activated
three months ago.
There is no expectation from members to post daily,
or even weekly, complex research or about their own
personal symptoms.
HQ was created to form a community, with the participation of
like minded members regardless of the volume of posts. There is
no community, and no homogeneity.
It's understood, that not everyone agrees on approaches to healing.
Most are seeking a targeted approach and are not interested in reading in depth
the mechanism triggering symptoms, the complexity of multi systems approach
and make the connection with other systems.
Posts on Categories show the difficulties when dealing with one isolated symptom. Patients do not make the connection with their environment, foods, weather fluctuation, medication regimen and other variables, as well as the physiological aspect of their symptoms.
Everybody wants a quick fix and easy answers.
A good example, which illustrate the above statement. Hypo/hyperglycemia - involves pancreas, liver, (the whole biliary/digestive system), kidneys, mitochondria, methylation, neurohormones, enzymes, brain, nutrition, diet, environment, adrenals, ANS, PNS, CNS, epigenetic and more.
Published papers about diabetes and other metabolic syndromes, recognize the limitation concerning the mechanism in its entirety. This is replicated for a broad spectrum of diseases and symptoms.
I read about the A1c test for diabetes. No disappointment at the lack of general consensus for interpretation. Same for glucose challenge test, and fasting glucose. The latter fluctuates dramatically, or stable for long period of times.
If anyone is serious about resolving this one issue, it means reading up on all those systems pertaining to hypo/hyperglycemia, discussing and exchanging info on how to keep it under control without resorting to dangerous insulin or Byetta and other toxic drugs.
This applies to all (most) symptoms and diseases.
Tests, diagnostic procedures, MRIs, Scans and ultra sounds
are not reliable. Most are subjective and others have
loosely defined frame of reference.
Some tests are easier to
interpret, but in order to reach a concluding diagnosis, tests are merely
supportive of a diagnosis. It should be based on symptoms and tests, and
the competency of the clinician, and even then...
Very few are able to grasp this concept...
And less show interest in reading and
connect the dots.
Most people rely on their MDs & NDs to solve
their health issues.
Few are interested to read in depth contradictory
research, disseminate and analyze, whilst self monitoring, listening to what
the body tells them, common sense, and NOT relying entirely on research.
A recent symptom (serious) which doctors were clueless about, was solved
based on reading up, and make an association with a compound
in one food.
Most people find it difficult to accept that often, the solution takes time, patience,
and motivation, and can be simple. Sometimes not.
Its more acceptable for most people to be given a faddish scientific label,
and try various drugs or therapies.
A few years ago, I was given a diagnosis of "neurocardiogenic syncope" lol
well, its the same as having vaso-vagal syncope, new name, same mechanism,
and still, little progress understanding the mechanism and how to treat.
Also given the “cardiogenic arrhythmias”, and this goes on and on
whilst prescribing even more toxic meds, leading to even more symptoms...
Same for neurogenic bladder, does not matter what it’s called, the problem
existed long before the new label, now a different label to prescribe even more
toxic drugs, which for most, was caused by toxic drugs.
Its tragic-comic considering there is no general consensus of those theories and no real frame work within the medical community to resolve this whilst being in the clutches of Big Pharma.
Glad to say, a few of us, resolved some health issues, whilst preventing more health disasters based on being well informed and listening to symptoms. It would be not arrogant to say, that in some cases, it was life saving!!
It’s not possible for one person to give an answer to one question or attempting to help with one symptom, too involving and complex. I certainly can't on top of my head answer one simple question without checking my notes, database of info, and have time to prepare, supplying links, urls, and other research papers pertinent to the one question.
It takes a concerted effort and the onus is on all participating members who belong to a forum. It’s burdensome, and not fair, in particular for those of us who are seriously ill.
Symptoms, coping tips, various therapies and approaches could be discussed, as well as other
threads such as nutrition, would be encouraging, supportive, and does not require much effort or brain power. (Cognition is an issue for most of us).
The above stated and non stated why few participates...
A collective blog for discussion may be a solution
for the few who are interested in taking
responsibility for their symptoms.